The Participant Advisory Board, established in 2020, provides unprecedented insight into understanding perceptions and receptivity to current approaches and potentially new practices in genomic research. By capturing the patient voice across key areas of our business the PAB will co-create solutions that will improve patients’ experience in genomic research and help shape healthcare of the future.
Alan Finglas
Founder & Research Manager, MSD Action Foundation & SavingDylan.com, Independent Advisor - Ireland
Declan Groeger
MS Lifestyle Blogger & Patient Expert, Independent Advisor – Genuity Study Participant
Helen Burchmore
EUPATI Fellow & Patient Expert, MS, Independent Advisor - International
Richard Stephens
Patient Expert, Oncology, Independent Advisor - International
Rory Mooney
Co-founder and CTO of Class Medical, Patient Expert, Ankylosing Spondylitis, Independent Advisor – Genuity Study Participant
Terri Brannigan
Patient Expert, IBD, Independent Advisor - Genuity Study Participant
Gerard Corcoran
Citizen Scientist, Independent Advisor - Genuity Study Participant
Nuala Ryan
Healthcare Consultant and Patient Expert, Oncology & Rare Disease, Independent Advisor – Genuity Study Participant Chair Participant Advisory Board
Sarah O’Connor
CEO, Asthma Society of Ireland & Patient Expert, Independent Advisor - Ireland
Veerle Aertsen
EUPATI Fellow, Patient Expert, Young Onset Parkinson’s Disease (YOPD), Independent Advisor – International
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