Participant
Advisory Board

The Participant Advisory Board, established in 2020, provides unprecedented insight into understanding perceptions and receptivity to current approaches and potentially new practices in genomic research. By capturing the patient voice across key areas of our business the PAB will co-create solutions that will improve patients’ experience in genomic research and help shape healthcare of the future.

Alan Finglas

Founder & Research Manager, MSD Action Foundation & SavingDylan.com, Independent Advisor - Ireland

Declan Groeger

MS Lifestyle Blogger & Patient Expert, Independent Advisor – Genuity Study Participant

Helen Burchmore

EUPATI Fellow & Patient Expert, MS, Independent Advisor - International

Laura Cooke

Patient Expert, Diabetes, Independent Advisor - Ireland

Richard Stephens

Patient Expert, Oncology, Independent Advisor - International

Rory Mooney

Co-founder and CTO of Class Medical, Patient Expert, Ankylosing Spondylitis, Independent Advisor – Genuity Study Participant

Siobhan Freeney

Patient Expert, Oncology, Independent Advisor - Ireland

Terri Brannigan

Patient Expert, IBD, Independent Advisor - Genuity Study Participant

Gerard Corcoran

Citizen Scientist, Independent Advisor - Genuity Study Participant

Nuala Ryan

Healthcare Consultant and Patient Expert, Oncology & Rare Disease, Independent Advisor – Genuity Study Participant Chair Participant Advisory Board

Sarah O’Connor

CEO, Asthma Society of Ireland & Patient Expert, Independent Advisor - Ireland

Veerle Aertsen

EUPATI Fellow, Patient Expert, Young Onset Parkinson’s Disease (YOPD), Independent Advisor – International